About Me

Oregon
Why Double Trouble? Well I'm the Mom of two boys. Two boys that are not only 14 months apart but they both have Cystic Fibrosis. So not only are they crazy guys they are two very special guys that will have and share a special relationship with each other that I will never understand. But as their Mom and #1 fan I would like to share with everyone what a crazy day is like with these two. From watching Curious George, Thomas the Train, Taking enzymes, Coloring, Doing treatments, Fighting, Weight Gain, Weight Loss and Brotherly Love. I'm also committed to do my very BEST in helping everyone know what CF is really all about.

Friday, February 4, 2011

???????

Got to love it when there is so many things running through your mind that you can't even think of a "Title" for a blog post. Wow.... So today marks a month that Carson got his G-tube and still I am amazed how it has totally improved him. And here I thought he was doing good before,  he was running around and playing, he really didn't get the sniffles very often, and yes his eating was a challenge but I told myself that I could fix it or run myself into the ground trying to fix it. But now... WOW!!!! The one thing they didn't tell me was that getting this for him would crank his TERRIBLE twos up to over load. Geezzzz he is non stop and I guess the most gratifying thing about the whole thing is going to clinic and them telling me how proud they are of me for making this decision. Them saying they knew that it was a hard one but it was the right one and that it was paying off, because Carson is now above the 50 percentile for weight for length!!!! I knew he was gaining but with all the running around he was doing I didn't think that he would be above. So hearing them tell me that was so nice because for so long when I would leave clinic I always felt like they were disappointed that I wasn't doing what they were suggesting. Now... now I can give them crap that this G-tube has turned my sweet little boy into a little sh*t, hehe.

Ok so I shouldn't say that he is turning into a little poo because he still is my sweet little boy when he isn't running around or tormenting his lil brother. So all-in-all everyone one is doing good and the time I was spending on trying to get Carson to eat or find "Sammies" I now spend playing with my boys or getting after them for doing something that just 10min ago I told them not to do :) And it also gives me a chance to fight this disease in different ways like getting ready for this years Portland Firefighter Stairclimb "Climb for the Cure" I'm really excited because with some help from a very awesome friend and my Step Dad we are putting together a website for the climb. We have a Facebook page the climb but having a website I think will be very cool. So I will let ya know when it's out there so you can look for us and if you know any firefighters or are one yourself and your up for the challenge we would love to have you. I think I will call it a night for now and I hope everyone is doing good, loving life.and fighting the fight.

"You gain strength, courage, and confidence by every experience by which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along."
-Eleanor Roosevelt