About Me

Oregon
Why Double Trouble? Well I'm the Mom of two boys. Two boys that are not only 14 months apart but they both have Cystic Fibrosis. So not only are they crazy guys they are two very special guys that will have and share a special relationship with each other that I will never understand. But as their Mom and #1 fan I would like to share with everyone what a crazy day is like with these two. From watching Curious George, Thomas the Train, Taking enzymes, Coloring, Doing treatments, Fighting, Weight Gain, Weight Loss and Brotherly Love. I'm also committed to do my very BEST in helping everyone know what CF is really all about.

Sunday, October 3, 2010

We shall see????

So we went to see Steve the Eating Specialist on Thursday and we have seen him a couple of times with both Carson & Brandon. And no matter what I always walk out either with one of the boys eating good with him or I learn something new. Well this time both happened, Carson ate some stuff I didn't think he would and I learned a couple of things to look for when I am feeding Carson. Now as for Brandon..... he is doing fine with the eating I think he just plays off of Carson sometimes. But I guess my BIGGEST thing that happened was after we got home. The boys were hungry for lunch so I tried something that Steve told me to try with Cup of Noodles. So I made them took the noodles out and patted them dry, then put some on Carson's tray and immediately he said NO. So I sat down with him and started to eat them acting like I was a snake and the noodle was my tongue and just having FUN with the food. So he started playing with them and...... HE PUT ONE IN HIS MOUTH!!! and said " Oh yummy " ok so I didn't want to get to exited and and scare him. So I just said " Good job Buddy " gave him a high five and what do you know the little sticker ate two more. Now I know he only ate three noodles but I tried them and that's been our problem all along.

 Now three days later I think he is getting my head cold that I'm just getting over and he is not that interested in eating very much :( And to think I tried EVERYTHING to keep my germs away and off of things. But I guess it's bound to happen and I can't put them in a bubble like they tell me at the CF clinic. But you know it's one thing to try whatever when their out in public because there is only so much you can do. But when it's YOU that gives them something and your trying so hard to keep your self healthy, you just feel defeated. Now if I can only keep Brandon form getting it and then it coming around full circle again.

I'm just hoping that I can keep making and thinking of new ideas for Carson to eat. Like tonight he wanted ice cream and so he helped me make a milkshake. And not any old milkshake a GREEN milkshake, thank goodness for food coloring. So we shall see what come of all this new trying food thing for Carson we go see Steve again I think on the 14th and then CF clinic on Nov. 2nd? So I hope to up date soon with how things are going and PLEASE anyone who reads this and has any suggestions on different ideas or recipes for CFers feel free I'm always up for new things.

1 comment:

  1. You are doing such a good job honey, keep it up. I didn't know about the green milkshake.....green eggs & ham???

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